She remembers, as a child, fearing the night because that's when her sickle cell crises most often hit.
"I thought there was something about the hours between 2 and 5 a.m."I think that knowledge, that sickle cell disease was always sort of waiting in the shadows, kept me running forward and pushing ahead." Founding the Sickle Cell Consortium In 2014, Bailey founded the Sickle Cell Consortium, a non-profit that advocates for patients and their families.The organization helps families find the care they need, including mental health resources, and shares ways to avoid sickle cell crises.She's on the National Institutes of Health's Sickle Cell Disease Advisory Committee, and she is an executive member of the government's Cure Sickle Cell initiative created by the National Heart, Lung and Blood Institute.